Sunday, September 25, 2011

We Made It

We made it through our first night! Raul slept about 14 hours, and I got a pretty good night of sleep as well, though I started waking up early like we did in the hospital. The hardest part so far has actually been all his medicines. I have made a chart to keep track of them, but there are just so many! He fell asleep at 7 last night, so when I did his meds. and all that at 9, he got kind of mad. Since he is low to the ground in the pack n' play I had to take him out to put the cream around his g-tube, but he got over it quickly and went back to sleep luckily! I ran his feed over the whole time I expected him to sleep so we wouldn't have to get up all night to tinker with it, and that seemed to work well, other than putting us slightly behind for the day. When Raul woke up and started rolling over, I saw that he was in a puddle of poop, yuck, though he was more annoyed by the fact that I had to change his clothes. No throwing up yet, though he has been gagging some this morning. Hopefully doing it more slowly overnight helped with that feed. He is also super itchy, but we give him a slightly higher dose of atarax at home, so that should help. Not sure yet what we are going to do today. We are going to brunch at the RMH soon, then we may take Raul on a little adventure later!


  1. Love the airplane hoodie He looks like such a big boy! Hope you and Raul and Daddy have a fun adventure today.
    Miss you,

  2. What a smile! He's such a handsome boy. God bless! :)