Our day started off early with a 5:30 am blood transfusion due to a low
hemoglobin level. Around 8 we had Raul's radiation consult down in the
radiation department. We mostly talked, but at the end he went into the
treatment room and had to get a bunch of measurements taken. He was
really nervous about that part, but there was an awesome radiation tech
that helped a lot! The radiation does not need to be done sedated, but
there is no way he could stay still long enough alone in a room, so he
will be sedated!
When we came back to the unit he played with his
cars/trucks, pretend snow, and water for a while. The BMT team came in
for their rounds, and went over the plans. Later in the day the GI team
came up to change his g-tube size to make it easier for their scope
tomorrow. We went outside briefly, but Raul decided it was too sunny, so
we went back to the room. In the evening orthopedic surgery came by
again to see his knees and luckily they agreed with our Boston
orthopedic doctors that they would not recommend biopsying the bone. He
will have a repeat MRI on Thursday (they couldn't get it tomorrow with
everything else).
Raul
also had his first ever "babysitter" today! We signed up to have a Care
Partners volunteer come by and sit with Raul so that we could run back
to the Ronald McDonald House for more of our stuff. He didn't complain
at all when we left, and said he had fun, which was very reassuring as I
will most likely need to use them occasionally while here by myself!
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