Tomorrow will be our 100th day in the hospital, and
things are largely at a standstill. His fevers just won't quit, and they
have been looking everywhere but we have not identified a source for
his long term high fevers. The past few days they had been getting worse
again; almost constant, which also causes gagging 24/7. Yesterday one
of his blood cultures from Monday came back positive for Staph, so we
are assuming that was the cause of his worsening fevers. We restarted
two more antibiotics yesterday, and today he went about 8 hours between
doses of IV tylenol!
Inflammatory issues like infection can also
worsen aHUS, so we think that may be happening. This may be the reason
his bilirubin has been going up again causing him to be more jaundiced.
He is still needing platelets most days, and blood every few days. We
are hoping that this will improve over time with the medication for the
aHUS.
Raul is still peeing, which is great! And we were
surprised today when his kidneys had actually cleared some of his Vanco
from yesterday, so he even had to get another small dose today (last
time he was on it they only gave it after dialysis, as his kidneys
weren't filtering it). He will have dialysis tomorrow, then get Friday
off for Christmas.
Our family is here for Christmas, and Raul
actually demanded to get dressed today before his visitors came! This is
big for him, as lately he has refused to get dressed at all! He is also
asking more frequently to get out of the hospital after our break the
other night, and we are all happy that he is looking forward to that.
The plan is still to go out for about four hours on Christmas Day, which
I think he will love! He is quite deconditioned, so he will need to
rest a lot, but just getting out of the hospital is such a nice change
of scenery.
No comments:
Post a Comment