Last week was a busy week for us, with doctors appointments every day but one! The highlights are that Raul had another swallow study done, and he didn't aspirate at all, and only had trouble with drinkable liquids. This means he is now cleared to eat purees. He is still getting all his nutrition through his feeding tube, but has now been snacking on baby foods as well! Anything with texture or chunks makes him throw up, but he loves his "yum yums"!
At his pulmonary appointment the doctor said that she does not think he
has true interstitial lung disease, but that he has damaged lungs from
aspiration, as well as thickened airways (likely from inflammation). We
are not going to pursue any further testing at this point, but will be
followed every few months. She also prescribed an inhaler for when he is
coughing or having trouble with his secretions. So good news at both
This week we are spending the week in Rockport. I had a fairly minor
surgery yesterday, but I am recovering up here where my parents can help
with Raul. I am not able to lift him for a few days, so definitely
needed some help! He has been very cute and talkative, lately. He will
start back at school next week, in his second year of pre-school. I
can't believe he will be four in less than two months!