Sunday, June 24, 2012

New England Wild West Fest

Today we went to an event with the Starlight Foundation held at the New England Wild West Fest rodeo. We started off in a tent for the Starlight families that had lunch, crafts, face painting, pony rides, and a hay ride over to the arena. Raul LOVED the hay ride, because we were in the front so he could watch the tractor the whole time! After that we put on his new cooling vest (thanks to some of your donations and shirt sales!) because it was getting hot. We went back to the Starlight tent while we waited for the rodeo to start. While there we spent some time talking to Mrs. Massachusetts and her daughter who were both interested in Raul and his story. They were very nice! Then we went back and watched about an hour of the rodeo before we got too tired and hot. We saw the bucking broncos, some steer wrestling, and some roping.

Then we went to the ring where the pony rides for the other guests were happening. Raul enjoyed petting a small pony named Gracie, so we decided to give riding a try. He had been too scared at the Starlight tent, but that horse was bigger, and he had just woken up from a nap. But he LOVED riding Gracie! He got so happy as soon as he was on, and he even had good riding form! He was sad to say goodbye to the pony, so we are going to try to find him some other fairs and events with pony rides to go to!



It is TOO hot!











Saturday, June 23, 2012

T-shirt Sales!

Some of Raul's friends wanted to remind you that we are still selling shirts to support his medical expenses! Check out the "Support Raul" tab above to see how you can help!










Wednesday, June 20, 2012

Happy Summer!






Raul decided to line up his crayons...

... and then decided to throw all the toys out of one of his toy bins :)

Saturday, June 16, 2012

Raul's Auction

Just under a month to go until Raul's Auction, and we have some amazing items listed!

-Handmade pillowcase dress with hand-embellished ribbon flowers (18 month size)
-Two sets of silver plated earrings ("Hopes"/"Dreams" and "Thoughts"/"Prayers")
-Piggy Paint Little Firecracker gift set (non-toxic, odorless, kid-friendly nail polish!)
-Home canned jellies, jams, and pickles
-$50 gift certificate to Red Thread Stitches Boutique (custom made dresses)
-36" square quilt made of vintage chenille and minkee (perfect for a baby)
-Willow House ruffled glass bowl
-VeggieTales Bible,
VeggieTales DVD-Super Hero Triple Feature: Larry Boy, and VeggieTales bible indexing tab set
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Headband with interchangeable handmade embellishments. 1 red Camillia flower and 1 blue fascinator
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Handmade baby blue tutu (toddler size 2-3)
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Flutterby full size Scentsy warmer w/ scent bar
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Wooly Babes handmade 15" Waldorf-inspired doll. Blushed skin, hair color (TBD), dress, and undies
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Custom name magnets! Winner can choose up to 5 names.
-Art by Raul
-Unconditional Uncensored book
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Five cards by paper cut artist Nikki McClure
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Casting Keepsakes 3D Casting Kit
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Expect Miracles butterfly bib (custom color choice) x2
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ALFANI Shimmering Leaf Bracelet
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ADORABLE jungle themed feeding tube pads
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Butterfly Mini stonework
-Beautiful handmade quilt with butterflies in support of EB awareness
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Matching skirt set for your girl and her doll
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The Estrogen Posse eBook
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West with the Wind eBook
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Willow House Tuscan Sage Bowl

Tuesday, June 5, 2012

I Refuse...

A friend of mine, and EB Advocate, Christie Zink is selling items to bring awareness to EB. There are t-shirts, and also a kit that includes: a tote bag containing t-shirt, awareness cards, water bottle, bracelet, and a car decal. Benefits from these sales are going to the PUCK (Pioneering Unique Cures for Kids) fund to support EB research. Currently, there is a matching grant for PUCK, and proceeds from these sales are part of that!

In the words of Christie Zink:
"EB is the worst disease you never heard of and I want that to change...will you help me?
This year I ask each of you to refuse to wait for the change and instead be a part of the change. Will you be a voice, a voice for all of those who cannot speak? Thank you so much for being a part of this and helping to be the voice for these beautiful children!"

If you would like to purchase, visit http://irefuse2012.eventbrite.com/









Sunday, June 3, 2012

Auction!

In a few weeks we will be having an online auction to raise money for Raul's medical costs, and with the hope of being able to take him to MN for a bone marrow transplant consultation! Please let me know if you would like to donate an item to this auction! I will post the information for how to participate in the auction when it gets closer.



photo by Kristen Hogan

photo by Kristen Hogan