A friend of mine, and EB Advocate, Christie Zink is selling items to bring awareness to EB. There are t-shirts, and also a kit that includes: a tote bag containing t-shirt, awareness cards, water bottle, bracelet, and a car decal. Benefits from these sales are going to the PUCK (Pioneering Unique Cures for Kids) fund to support EB research. Currently, there is a matching grant for PUCK, and proceeds from these sales are part of that!
In the words of Christie Zink:
"EB is the worst disease you never heard of and I want that to change...will you help me?
This year I ask each of you to refuse to wait for the change and instead be a part of the change. Will you be a voice, a voice for all of those who cannot speak? Thank you so much for being a part of this and helping to be the voice for these beautiful children!"
If you would like to purchase, visit http://irefuse2012.eventbrite.com/