Please consider supporting the EBRP (EB Research Partnership), an organization dedicated to
funding research towards treatment, and ultimately a cure, for EB! My
sister and mom will be taking part in a 5k, and my sister will also be
taking part in the 10 mile race, at the Twin Cities Marathon in October,
to raise money for the EBRP. This is extra special for us, as Raul will
be receiving treatment in MN for several months. Please help us fund
the cure we so desperately need!
Donate here:
https://www.crowdrise.com/ebr-2015medtronictcm/fundraiser/ruhls
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