Hands are often an issue for people with EB (especially recessive dyastrophic like Raul). We had not been wrapping his hands before, and they weren't wrapped in Romania, so the fingers have started to web and the fingers have started to curl down. About a month ago I decided to try doing the hand wrapping. There are certain methods used to keep the fingers from webbing/fusing. At first Raul would just rip them off as soon as I finished putting them, but finally I have found a method that works for him! And with this way his palms and fingers are unbandaged, so he is not losing any function. I think they are starting to look better! The skin is also improving because I wrap them with a bunch of aquaphor rubbed on his hands underneath. Hopefully this will keep us from needing hand surgery for a long time!
About two months ago in CO
About two months ago in CO
His bandaged hand today
Hand today looking good!
You can definitely see a difference! That's great!
ReplyDeleteHis thumb looks like it's been pulled into a better position. Great Job!
ReplyDeleteYou can certainly tell a difference but seeing his little hands like this STILL breaks my heart :( poor buddy. Good thing he has someone wonderfule like you in his life!!!
ReplyDeleteCaroline you do SUCH an amazing job with Raul! He is so precious. I'm sure you both feel blessed to have each other : )
ReplyDeleteHuge difference! Oh, I just want to cuddle Raul... he's so precious! xx
ReplyDeleteGod job Caroline!Those little hands look much better! Love the new background picture with Raul,he is such a big boy now! A warm hug from us ,Lavi & Ivy
ReplyDeleteThere is vast difference in his hands! Great job, Caroline.
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