Raul's parents have come a long way over the last couple months. His mom has always agreed with having him come here for medical care, as she knows it is what is best for him. His father on the other hand initially objected and accused his wife of selling Raul (he is alcoholic). Of course this is not the case, and the family is not getting any money for doing this. Luckily, his dad came around, and now both parents are on board. I know it must be hard for them to understand that care, and a trial treatment, IS available for their son after everything they were told when he was born. And, of course, they lost his twin sister to EB at one month of age. But Raul has gotten stronger, and doctors here believe he does not have the lethal form of EB. The type they suspect, RDEB, is not the best type to have, but he should not have to die at the young age initially predicted for him. Raul's parents have put a lot of trust into us, foreigners they have barely met, and are trusting us to take care of their son, knowing it is his best option.
To thank them for what they are doing for Raul, I put together a Snapfish photo album with all my cutest pictures of Raul to give to them when I am back in Romania. I didn't want to remind them of the suffering they already know he endures, so I tried to pick pictures that did not show as much skin damage, and where he looks happy. It will be good for them to see how happy he truly is! And of course, part of me hopes that we can bring him back to Romania stronger, and in good enough condition that he could go home to his parents, though I know that is unlikely given medical expenses.