Article about Raul

Just over a week ago I was contacted by a writer who was interested in doing an article on Raul, and his struggles with EB. She had learned about him through a friend that posted Raul's fundraising link. She quickly went to work contacting Raul's doctors, researching EB, and sending me lists of questions to answer. The result is a wonderful article that will both share Raul's story, and bring awareness to EB. Please take a few minutes to read her article that was posted by the first publication today!

http://pacificpalisades.patch.com/blog_posts/raul-a-romanian-butterfly-battling-epidermolysis-bullosa