Age = 10 months
Weight = 12,79 pounds / 5800g
Height = 25,2 inches / 64 cm
Head circumference = 17,32 inches / 44 cm
Chest = 15,75 inches / 40 cm
It seems that Raul has only gained one pound in the last 5-6 months. He is below the 1st percentile for weight and height, and in the 7th percentile for head circumference. I emailed one of the doctors who has been following his case, and she said, "That is really concerning because kids with EB have a lot of malabsorption issues. Often they have to have g-tubes. He really needs to be seen by an interdisciplinary team." We really need to get him here soon, but there has also been some question on the Romanian side about blood tests he had a month ago. They showed that he had high platelates, so he was put on blood thinners. He will need to be tested again before he travels. There was also mention from the Romanian side about how he might need to fly with oxygen, which I don't understand (I think it was supposed to be related to the blood tests).