First Day of Vacation

Yesterday was our first day of our vacation in Rockport. Raul had a fun and busy day! Lots of playing/building, a walk around a quarry, a trip to the accessible playground, tour of our house that is under construction, and dinner at a restaurant! Sunday night he didn't sleep very well, but last night after our busy day he slept much better! The weather has been perfect so far (other than the storms the day we arrived), it has not been too hot!

When we walked around the quarry he pretended that his stroller was a grating truck (the path is mostly gravel), and he enjoyed meeting a much of dogs and their owners. He really liked one greyhound, and while petting her he said, "Jade, come be my dog" very matter of factly. We also spent a little while flying our giant dog kite out on an ocean overlook at the quarry.

Then we got to go to one of Raul's favorite playgrounds, which he really enjoyed. While on the swings we pretended to be blasting off to space, and sighed and said, "I could do this all day". We also played a game with a ball we found where we would hold it and he would kick it as he swung up. 

Last Day of Pre-K!

Today was Raul's last day of the school year, and last day of pre-school! He was so tiny when he started in 2012. Back then he was still imitating speech with noises/humming, but now he talks up a storm and can spell or sight read 30+ words! He had already started scooting, but in his first year of school he learned to go from lying down to sitting up on his own, and now he has mastered his power chair. His social skills have come a long way too, and he will now play with and talk to other children when we are out and about. 

First Day of Pre-School 2012

Last Day of Pre-School 2015

Committee Approval!

We heard from Minnesota last Monday that Raul had been approved by the external committee for the trial! It took them a long time to submit his info, but once it was, he was approved in less than two weeks! We were originally looking at taking part in the next protocol, which will begin later this year, but since Raul has been having so many issues they agreed that he could be on the current trial instead. 

The search for a donor has now begun, and thankfully he has many 8/8 matches to choose from! The first step will be to have 4-5 potential donors get another blood test, and then the hospital will choose who is the best match. After that the donor will have to confirm that they are willing to donate, and get a physical. So we are looking at a minimum of two months until going back to MN, and it could be longer depending on the donors availability.

Water Fun

We have had some fun with water lately. Raul does not like to get fully immersed in water, like the tub or pool, but does like playing with water and getting wet! At the sprinkler park my mom would run him through all the sprinklers and he kept saying they were doing "action". 

Final Baseball Game

Today was Raul's last baseball game! He was pretty tired and hot, but he stuck it out through the game. This was the first game he got to use his power chair for, so that was exciting. At the end of the game all the players got medals, and Raul has said he wants to wear his medal forever! Then the teams took team photos, and thankfully Raul cooperated and smiled for the pictures. After that he got to play on the playground for a little while, which he always enjoys! We weren't sure if he would want to do it again, but he is saying he does, and that he might want to try wheelchair soccer in the Fall!

Needham Touch a Truck

Last Sunday we went to the Needham Touch a Truck. Raul really liked that they handed out maps of where all the vehicles were in the parking lot. He didn't want to get in any of them, but he touched everything, won a few things playing games and in raffles/auctions, and spent a while playing in a booth that had toy trucks to play with. He had a good time! 

Providence Zoo

Today we went to the zoo! Raul brought his power chair, and drove himself most of the time, which was pretty impressive since it was a bit crowded! It is hard to maneuver through the crowds, especially when people are constantly cutting in front of you or stopping in the middle of the path. He brought the giraffe toy he had gotten last time to show the real giraffe that it is named after. With his power chair he can raise himself up to see over most of the enclosures, which is great! He had a list of which animals he wanted to see, so we made sure to get to all those. The ladies in the goat petting zoo area were very kind, and worked hard to get a goat to come over for Raul to pet. 

Then we went to play on the zoo's awesome playground. They have a wheelchair swing, which he loved, and then we went up into the treehouse, did some water painting, and played a little in the area with water sprayers. He wanted to stay in the water area longer, but we hadn't brought the right clothes and didn't want his power chair to get soaked, so we told him we would go back another time! The water definitely felt good, as it was much hotter than the weather channel had predicted!