Be a Voice Fundraiser

We are having a fundraiser for Raul's medical expenses through Be a Voice! $5.00 from each order goes to helping orphans around the world, and the rest is sent to us for our fundraising! It is an amazing opportunity! Please check out their wonderful items for sale! Just make sure you enter my name (Caroline R.) below your postal code in the "coupon code" line so that the funds go to us!
http://beavoice.me/shop/

"EB" Part of the Cure

visit the "Support Raul" tab above to see how you too can be part of the cure!

More Wheelchair Fun

My dad brought breakfast this morning, and also brought Teddy for Raul to play with. We took Raul out in his chair, and he was very happy to see Teddy, and still thought he was really funny. Raul drove around a little, and watched Teddy run around. Then we came up to play for a while before nap time (Raul was up really early this morning).

Raul's OTHER New Wheels

Through the help of some wonderful friends, and Raul's PT, Raul has been given a loaner power chair by Permobil. Permobil, along with the vendor, are working on getting him a more permanent chair (either new, or a donated demo chair), but for now, this is working great! Raul loves his chair! He is able to move it himself now, but has not mastered steering yet! Today he drove it over to the other building in our compound to pick up a package, and he actually did the straightaway by himself with me just walking next to him! I think it will take him a while to figure out steering, as we can't just explain it to him as you might with some kids, but he will get it! He cries every time he has to get out of his chair; he LOVES his new wheels!

Help Support Raul!

Please take five minutes to watch this video about Raul created by a wonderful friend and advocate for people with EB. Then check out the "Support Raul" tab above to see how you can help!

Learn more about the BMT trial in MN here: http://www.childrenscancer.org/puck/research.html

More of Raul's New Wheels

Birthday (Part 2)

Well on Saturday, for my actual birthday, my dad took Raul and me to IHOP for brunch. For dinner my parents, my sister, and her boyfriend came over to our apartment and we had a dinner of lots of yummy homemade appetizers. Raul liked having guests over, and was sad when they had to leave. My mom stayed the night to take care of Raul so I could get a good night of sleep. Raul gave me tickets to the Big Apple Circus for my birthday, so we are looking forward to that!

Today in the mail came a present for Raul, that was donated from Kindred Kids. He got a new Rifton gait trainer!! It is dark blue, and the attachments are black. I put him in it quickly before his nap, and he seemed to like it. He didn't quite get that he was supposed to walk himself at first, so I helped him, but then he took a couple steps on his own!